In order to better serve the requirements of those who surround the CHARGE children, the CHARGE Association, the CRESAM, the medical professionals from NECKER’s Hospital, the CESSA, and the ANPSA propose this to families and information and exchange conference professionals.

By making information available to all prospective stakeholders, these conferences hope to improve the daily lives of children and young people with the condition as well as medical and educational approaches.

 

The conferences

The following conferences on the CHARGE syndrome will be held at CREPS of Poitiers on September 20, 21, and 22. Children with CHARGE syndrome are welcome; they can participate in welcome activities and conferences with facilitators.

The expected audience

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Goals

The purpose of these conferences is to disseminate the most recent advances in healthcare, hospitality, and medical-social support for children and young people. Leading authorities on this uncommon illness and disability are asked to contribute.

The Parents Association, CRESAM, the medical staff at Necker Hospital, CESSA, and ANPSA worked closely together to prepare for these seminars and construct the program. By making information available to all prospective stakeholders, this project seeks to improve both the daily lives of children and young people with the condition and medical and educational methods.

The acts

Acts will be put into effect at the end of this Congress, and just like previous versions, a publication in printed and digital form is envisaged. It is also possible to request certain accessible formats (such as big print, Braille, etc.). The cost of this book will be nothing.