About administrador

This author has not yet filled in any details.
So far administrador has created 47 blog entries.

1 Million Signatures Campaign

The campaign “One million for Disability” runs from 23 January to 3 October 2007

EDF has just launched a campaign to collect 1 million signatures to combat discrimination in all aspects of the lives of disabled citizens in Europe. It is important for EDbN members to support this campaign as disability specific legislation at a European level would encourage national governments to bring in disability specific legislation in countries where there is none or it is inadequate at the moment.

2017-10-19T11:15:05+00:00 August 5th, 2012|News|

Europe recognises deafblindness as a distinct disability

A historic Written Declaration on the rights of deafblind people was formally adopted by the European Parliament on 1 st April, 2004. This was the culmination of a long campaign by deafblind people, families and professionals in Europe. The Written Declaration is a 200 word statement about the fact that deafblindness is a distinct disability. It lists the rights to which deafblind people should be entitled.

2017-10-19T11:35:08+00:00 August 5th, 2012|News|

LONDON meeting. EDbN Reconstitution. March 2003.

EDbN was originally set up to access funding from Europe for deafblindness projects. One of its principles was to involve a parent or family representative, deafblind person and professional from each country.

This strong wish for continuing EDbN was strongly expressed again at the family conference last October in Puglia, Italy, where many families came together and explained their need for a platform.

2017-10-19T11:51:08+00:00 August 5th, 2012|News|

EDbN working groups


The working groups are the EDbN way of taking advantage of the expertise of its members on concrete issues of common interest. Some of them are:

  1. Liason and Monitoring of issues of EDF.
  2. Structural funds of EU.
  3. Sharing projects at European level. 
  4. Accessibility.
  5. Statistical info. Counting People with Deafblindness.
  6. Good practices on Deafblindness.

2016-10-21T11:31:08+00:00 July 31st, 2012|Sample Data-Articles|

EDbN Full Members

Application for membership

2017-10-10T09:57:52+00:00 July 31st, 2012|Sample Data-Articles|

EDbN Staff


Lucy Drescher:

  • Lead campaigning
  • Encouraging participation in campaigns
  • Disseminating information on campaigns

Ursula Heinemann (Network Co-ordinator):

  • Managing the administration of EdbN
  • Responding to enquiries
  • Encouraging participation
  • Disseminating information
  • Coordination and support for meetings

Ricard Lopez:

  • Chair
  • Website management
  • Managing the EDbN email group
  • Encouraging participation of families
  • Official representative of EDF
  • liaison with WFDB, EDBU, EBU and DbI

2016-10-21T12:47:13+00:00 July 31st, 2012|Sample Data-Articles|

EDbN Constitution





1. Name, Legal Form and Registered Address

The association is called the European Deafblind Network (EDbN). It is a non-governmental, charitable and non-profit making organisation. The organisation must have at least one registered address in a European Union country.


2.1 Aims

The aim of EDbN is to improve the situation of deafblind people in Europe with the objective of achieving their equal rights and full participation in society, and to be a European forum for the exchange of knowledge and experience in the area of deafblindness.

2.2 Functions

a) To support and help deafblind people, their families and the people who work on their behalf.

b) To work for an improvement in the living conditions of deafblind people, and for their rehabilitation and integration in Europe.

c) To promote the exchange of information and experiences between organisations of and for deafblind people and other organisations.

d) To promote and carry out research and studies in all areas that affect deafblind people.

e) To collect and distribute information about the situation of deafblind people in Europe.

f) To provide technical and material support for national organisations of deafblind people, their families and professionals working on their behalf.

g) To support national organisations in Europe active in the field of deafblindness.

h) To implement necessary measures to achieve the aims of EDbN.

2.3 Relations with other organisations

EDbN establishes and maintains relations with the European Union (Parliament, Commission and Council), with the institutions of the United Nations, with international organisations in Europe and with the regional offices of the international organisations whose aims are in accordance with those of EDbN and its members.


3.1 Forms of Membership

There are the following forms of membership:

 a) Full membership

b) Associate membership

c) Honorary membership

3.2 Full Membership

3.2.1Full Membership of EDbN is open to associations and organisations

- of deafblind people

- of their families

- of professionals working for and on behalf of deafblind people and or their families.

3.2.2 Applications for Full Membership must be made to the Management Committee. In case of rejection the applicant can request a decision by the Council.

3.2.3 For each of the three groups only one association or organisation per country can hold Full Membership. The organisation is represented in EDbN by a person, who must be a member of the organisation, chosen by the other members.

3.2.4 If a member represents more than one group it is entitled to send the corresponding number of delegates. This is also the case if a member is active in more than one country.

3.3 Associate Membership

3.3.1 Associate Membership of EDbN is open to other organisations

3.3.2 Associate Membership is decided by the Management Committee and requires the agreement of the Council.

3.4 Honorary Membership

Honorary Members are chosen by the Management Committee in recognition of their  contribution to, and support of, the interests of deafblind people.


4.1 The governance of EDbN consists of the following bodies:

-the Council

-the Management Committee

4.2 Council

4.2.1 council is the supreme governing body of EDbN.

4.2.2 Meetings of Council are open and consist of delegates representing the Full Members. Each delegate has one vote. Providing that notification for Council Meetings is in accordance with this Constitution they are quorate regardless of the number of delegates present.

Associate and Honorary Members may participate in Council Meetings in a non-voting capacity. -

4.2.3 Council meets at least every two years. Additional meetings may be convened at the request of one third of the Full Members, at the request of the Management Committee or when a new Management Committee is to be elected.

4.2.4 Meetings of Council are announced in writing, with an agenda, by the Secretary at least 12 weeks in advance. The date of the postmark is taken as the date of dispatch.

4.2.5 Applications and motions to be considered by Council must be received by the Secretariat eight weeks before the meeting. They must be circulated to the members immediately.

4.2.6 Council has in particular the following responsibilities:

a) to determine policy

b) to discuss all recommendations presented by the Management Committee and make the necessary decisions

c) to receive reports from all the committees and give or withhold approval

d) to set budget parameters strategically

e) to receive the Treasurer's report and give or withhold approval

f) to determine the membership fee

g) to elect the Chairman of EDbN. The Chairman chairs both Council and the Management Committee

h) to elect the Management Committee

i) to approve the Vice-Chairmen, Treasurer and Secretary, appointed by the Management Committee

j) to consider all proposals presented to it

k) to elect two members of Council to act as auditors who examine and report on the management of EDbN's finances

l) to consider resolutions to amend the Constitution. For such a resolution to be carried a 75% majority of all votes cast is required. Resolutions to amend the Constitution must be circulated to all members at least four months before the Council Meeting at which they are to be discussed .

m) to make decisions concerning the dissolution of EDbN. For such a resolution to be carried a 75% majority of all votes cast is required. A resolution to amend the Constitution must be circulated to all members at least four months before the Council Meeting at which it is to be discussed

4.2.7 Only the delegates of Full Members are entitled to vote. Each delegate has one vote which is not transferable to another Full Member. Voting is through consensus or through the raising of hands, unless a delegate requests a secret ballot. In this case a secret ballot is held.

4.2.8 All voting, with the exception of amendments to the Constitution and the dissolution of EDbN, requires a simple majority of the votes cast.

4.2.9 Elections are carried out by secret ballot. If the number of candidates is equal to the number of positions to be filled they can be elected in one ballot. The candidates elected are those who receive the majority of votes in the first ballot. In the second ballot the vote is between the two candidates who received the most votes cast in the first ballot. If neither of them receives a majority of the votes then a third ballot is held and the candidate- who receives the most votes is elected.

4.3 The Management Committee

4.3.1 The Management Committee's function is to undertake the business of EDbN.

4.3.2 The Management Committee consists of the Chairman, two Deputy Chairmen, six Committee members plus the Secretary and Treasurer. Each of the three groups from which Full Membership is drawn must be represented by three members on the Committee. The Chairman should be elected from these three groups in rotation

4.3.3 The Management Committee is elected for a period of four years. The term of office ends with the election of a new Committee.

4.3.4 The meetings of the Management Committee are announced in writing (with a full agenda including all items to be voted on) by the Secretary at least eight weeks in advance. The date of the postmark is taken as the date of dispatch.

4.3.5 The Management Committee has a quorum when at least six elected members are present and each of the three groups of Full Members are represented.

4.3.6 The Management Committee can appoint a Secretary and Treasurer to carry out its tasks. The Secretary and the Treasurer carry out their tasks under the supervision of the Management Committee.

4.3.7 If a Committee member retires between elections the Management Committee may appoint a replacement from the same Full Membership group as the retiring member.

4.3.8 Voting at Management Committee meetings is by a two-thirds majority.

4.3.9 If there is a calendar year with no Council Meeting the Management Committee is to draw up a written report for all members.


5.1 Financial year

The financial year shall be determined by Council.

5.2 Membership fees

The membership fees determined by Council are to be paid in the first month of the year. If the deadline for payments is missed the member concerned forfeits its entitlement to vote in Council or Management Committee meetings of EDbN. It can, however, apply to the Management Committee for a different settlement date.

5.3 Budget

5.3.1 The Council decides on a strategic budget to cover a period of four years. Each year the Management Committee is to provide a budget that is in accordance with the strategy and which is to be made available to the members in the first quarter of the financial year.

5.3.2 It is the role of the Management Committee to balance income and expenditure in the budget and ensure that expenditure does not exceed the available funds.

5.3.3 The auditors must be given access to all documents at any time. Their report must be circulated immediately to members.

Dublin, Ireland   Nov 11th 1997


2017-10-10T09:57:52+00:00 July 31st, 2012|Sample Data-Articles|