A personal experience: Letter of Peter Fasung of Slovakia. When we got the wind of the information that also in year 2004 we will participate on second family conference "Listen to me 2", we were more than happy. Our pleasure was really great because also our younger and healthy daughter Zuzka could participate.
20th – 26th June 2004 SLETTESTRAND, NORTHERN JUTLAND (DK).
A historic Written Declaration on the rights of deafblind people was formally adopted by the European Parliament on 1 st April, 2004. This was the culmination of a long campaign by deafblind people, families and professionals in Europe. The Written Declaration is a 200 word statement about the fact that deafblindness is a distinct disability. It lists the rights to which deafblind people should be entitled.
EDbN was originally set up to access funding from Europe for deafblindness projects. One of its principles was to involve a parent or family representative, deafblind person and professional from each country.
This strong wish for continuing EDbN was strongly expressed again at the family conference last October in Puglia, Italy, where many families came together and explained their need for a platform.
A personal experience: Letter of Arleta Kubicka of Poland. On 20-27 of October 2002, I participated in the Family Event "Listen to me" held in Bisceglie, Italy. It was a great honour to be chosen as a representative by the Association for the Welfare of the Deaf-blind People. It was the first international event I took part in. I was accompanied by the blind interpreter, Anna Rozborska. I was going there with a tremendous potential of energy. I wanted to learn, see and hear as much as possible In order to be able to share that with other parents from the Section of Parents of Deafblind Children at the Association.
20th – 27th October 2002 Ruvo di Puglia (BA, Italy)