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2013 Deafblind Awareness International Week

August 4th 2013

Once again FESOCE celebrated the Deafblind Awarness International Week simultaneously with the Helen Keller Foundation Deafblind Awareness Week.

In June 1984 former United States of America President Ronald Reagan recognized Deafblind as a disability. Every year since that date and during the last week of the month of June, the Heller Keller Services for the Blind celebrates a series of activities in order to acquire some exposure and to socially conscience the general public over this disability.

August 4th, 2013|News|

EDbN General Assembly Meeting

EDbN General Assembly 2013

Lille (FR), 24 August 2013   TIME: 17h


Room Hainaut
Congress Centre
Lille Grand Palais
1 Boulevard de Cités-Unies

In the upcoming Deafblind Conference to be celebrated in Lille, France; EDbN will organize its first General Assembly in more than 10 years to explain all our members the objectives we pursue, our working methods and to exchange opinions.


August 4th, 2013|News|


 In this issue: What is deafblindness? EDF Action plan Budapest Accesible Catalonia Recognition in POLAND Making a difference in Europe Public consultation with a view to a European Accessibility Act EDbN Biannual working plan 2012-2014 World Confederation of Parents UK Landmark Supreme Court judgement clarifies social care law How many deafblind people are there? Deafblind Shape. Tactile Symbol of [...]

August 3rd, 2013|Publications|



1st August 2013

The 8th Deafblind International European Conference will be held in Lille, France, from the 24th to the 28th of August 2013.

The Deafblind International Conference, entitled “Identities and changes – Commonalities across deafblindness – Learning from each other” will tackle the main challenges deafblind individuals, their families and the professionals who work with them, face along their life.

August 1st, 2013|News|

Deaf, hard of hearing and deafblind people join the board of directors of the European Disability Forum (EDF)

Ricard López, president of EDbN, among the new members

29th May 2013

The general yearly Meeting of the European Disability Forum (EDF) took place on the 25th and 26th May in Athens, with the participation of the member organizations representatives from whole Europe. EDbN was present there as member of EDF.

May 29th, 2013|News|

Deafblindness and the loss of autonomy

Ethical and care reflections concerning a recent case of euthanasia


The international press has been shaken by the recent news regarding a case of euthanasia applied to two brothers in Belgium. According to information available, the Verbessem twins, deaf since birth, were diagnosed with a degenerative ocular disease that would deprive them of their sight and would make them become Deafblind.

Since this is our area of expertise, EDbN cannot abstain itself from making a pertinent reflection that under no circumstances questions the decision of two adults of sound mind whose end fits into the terms established by the legislation of their country.

January 23rd, 2013|News|

European Platform of Deafness, Hard of Hearing and Deafblindness first conference

One of the objectives of the conference is to highlight the lack of accessible and reliable data to key stakeholders who are in a position to change this situation.


The European Platform of Deafness, Hard of Hearing and Deafblindness announces its first conference, Mind The Data Gap! Lack of statistics for an effective EU inclusion strategy?! It will be held this Thursday 15 of November at the Representation of the free state of Bavaria, Brussels.

October 31st, 2012|News|

PEGGY FREEMAN one of the great ‘trooper’ from the early days of Deafblindness passed away.

Do you remember “The Deafblind Baby”? Peggy Freeman one of the great ‘trooper’ from the early days of Deafblindness passed away.

Peggy Freeman, MBE

1918 – 2012

Co-founder of Sense

 “Above all my thanks go to Bunty and all deafblind people. To serve them has given a purpose to my life.” 

 Peggy Freeman, MBE, sadly passed away in a Nottingham hospital over the weekend, following a short illness. Aged 94, Peggy was one of the parents who co-founded the National Deafblind and Rubella Association in 1955, the organisation which later became the charity Sense. 

September 20th, 2012|News|

Mind the Data Gap! Brussels 15 november 2012. 1st. Joint Conference of the European Platform of Deafness, Hard of Hearing and Deafblindness.


Mind the Data Gap!

Lack of statistics for an effective EU inclusion strategy?!

Save the Date – 15 November 2012, 14:00--17:30 CET

 The European Platform of Deafness, Hard of Hearing and Deafblindness is pleased to announce its first joint conference on the lack of detailed statistical data related to Deafness, Hard of Hearing, and Deafblindness.

 The event will take place at the prestigious Bavarian Representation, near  the  European Parliament in Brussels. Speakers include representatives from the European Institutions, as well as the European NGO community. A panel will discuss the need for high--quality statistical data and its link to the European Accessibility Act. The event will be followed by a networking reception.

September 2nd, 2012|News|

2006 September. Salou, Catalonia (ES). European Family Event Conference LISTEN TO ME 3 “Parent Power”

The V European Family Conference took place in Salou (close Barcelona), Catalonia - Spain, in October 2006 since the 1st until the 6th. The previous family conference was hold in Slovakia, The Netherlands, Italy and Denmark. From Italy these events receive the name of "Listen to me" so the Salou event will be called "Listen [...]

August 18th, 2012|Sin categoría|