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June 20, 2014

The European Deafblind Indicators project website project was developed from September 2012 to September 2014 by nine deafblind organizations from eight EU Member States. All of the individual members of the pro¬ject group are part of the European Deafblind Network (EDbN) and it is through this Network that the project was conceived and developed.

This project aims to create a common European framework for the assessment of institutional models of care for the deafblind based on indicators created ex novo: the Indicators of Deafblindness Equality in Europe (IDbEE). Its importance lies in the certainty that great differences in the degree of attention exist between the various European States.

The outcome of this project was nowhere near enough data is collected about deafblindness, and the extent of deafblindness is seriously underestimated. As most organizations do not cater for the specific needs of deafblind people, there are not enough specific deafblind services in most states. Communication support and personal assistance systems for deafblind people in Europe are sketchy at best and inadequate although it withholds their rights to health and social care, family life and leisure. As long as there is better support from the governments, change is possible. Therefore, it is imperative that on a European level we make a noise.


March 2nd, 2015|News|



Zagreb, Croatia - FEBRUARY 9th 2015

Febrero 13, 2015

The President of the Republic of Croatia annually honours meritorious individuals, Croatian and foreign nationals, organizations and legal entities with decorations and awards for their outstanding achievements, extraordinary contributions and true excellence in one's career accomplishments.

On Monday, February 9th, during a traditional ceremony that was held at the Presidential Palace of the President of the Republic of Croatia, Dr. Ivo Josipovic, has awarded the President of EDbU and Croatian Association of Deafblind Persons, “Dodir”, Sanja Tarczay, Ph.D., the honour of the ORDER OF THE CROATIAN STAR WITH THE EFFIGY OF KATARINA ZRINSKA, an honour given for the extraordinary services for healthcare, social welfare and the promotion of social moral values, recognition and creation of an environment for the quality of life of deafblind persons in Croatia and the world. She is the first deafblind person in Croatia to receive this honour.


February 13th, 2015|News|



January 20, 2015

On the 20th of January a meeting was held in the European Parliament between Ms Ulvskog, vice-president of the Committee on Employment and Social Affairs of the European Parliament, Javi López, Spanish MEP, Jutta Steinruck, German MEP, and Ricard López, president of EDbN, and four EDbN members: Lucy Drescher (Sense), Helle Buelund (CDH), Sonja van de Molegraft and Frank Kat (Kentalis).

As deafblind people have specific needs, which have been studied in the ‘European Deafblind Indicators’ project, we made a noise about it in the European Parliament.

We explained the current situation of deafblind people in Europe and the lacks this community has. We stated the social emergency of this community in Europe: there are 3 million deafblind people, 1.8 million of whom are elderly, and they have no guaranteed access to information and communication. As there is no visibility of this group, there is a lack of recognition, statistics and census, and there is a need of sharing knowledge by a European Resources Centre. The ‘We Can Be Connected’ project was also exposed, which initial objective is to apply for funding to the European Commission. We showed our interest in achieving that EUROSTAT and FRA agencies develop right statistics data on deafblindness and making the census compulsory.

EDbN requested a budget and their support to run the ‘We Can Be Connected’ project and a European Resources Centre and the chance to organise a hearing with the Committee of Employment and Social Affairs.

The outcome of this meeting was really positive, as Ms Ulvskog, Ms Juta and Mr López were very receptive to our requests. We are currently in touch with them and waiting for their proposals.


January 21st, 2015|News|



This condition will provide the necessary steps to explain the requirements and needs of Deafblindness to all the members of the European institutions

August 27, 2014

The European Deafblind Network (EDbN) has recently received the confirmation of the access rights to the European Parliament premises. The accredited status will allow our representatives of Deafblindness greater networking opportunities to contact all the members of the European Parliament (MEP).


In addition to the ease of access and movement, this new condition will allow to present the specific care requirements of Deafblindness directly to the appropriate authorities. Besides, it grants the right to be informed about regulatory changes made in employment areas, social affairs, transport, tourism, culture and education.

Previously, EDbN had been admitted to the Joint Transparency Register, the identification system of organizations linked to European institutions. The Joint Transparency Register is a mechanism created and managed by the Parliament and European Commission so as to provide accurate information about all the people involved in activities influencing UE decisions. It offers a single conduct code that makes organizations to follow the rules and respect the ethical principles.

The accredited status is a satisfied reason as it will enhance the needs of Deafblindness people facing the decision centers of the European institutions. 


August 27th, 2014|News|


The European Deafblind Indicators Project will finish with an open day conference on June 20th 

April 16, 2014

After two years working on the European Deafblind Project, for Lifelong Learning Programme of the European Commission, the project is getting to an end. The last meeting will be held in Barcelona and offering an open day conference next 20th June. It is expected the attendance of European and Spanish authorities, as well as professionals working on disabilities, from the social services and bound to deafblindness. 

May 12th, 2014|News|


On 11 February 2014, EDF presented its manifesto on the EU elections 2014 at the European Parliament. The event was organised in cooperation with the European Parliament Disability Intergroup and gathered a lot of MEPs; all of them expressed their full endorsement to the key priorities of EDF manifesto.

MEP Adam Kosa, who is also the President of the European Parliament Disability Intergroup, opened the event together with the Vice-President of the Intergroup, MEP Richard Howitt.

"In the next term of the European Commission we need a fully-fledged directorate on disability issues and we hope that we will achieve that. It is time to bring a real change to the lives of persons with disabilities”, said MEP Adam Kosa.  

February 13th, 2014|News|


On the occasion of the European Day for people with disabilities (3 December) the European Commission announced that Gothenburg is the winner of the Access City Award 2014. Gothenburg's commitment to increasing accessibility to transport, housing, work and employment is a good example that other European cities could follow in the future. Priority is given to people with disabilities when accessible homes become available. On the employment front, some 300 workplaces are being equipped with personal aids each year. The city is also systematically working on improving public facilities, with concrete actions to make amusement parks, playgrounds and the local university more accessible.

The second prize went to Grenoble (France) and the third to Poznan (Poland) – both cities having exhibited remarkable progress in terms of accessibility to transport, education, accommodation, shopping, culture, sports, tourism and employment.

December 17th, 2013|News|


This pilot project established by Ádám Kósa MEP and Werner Kuhn MEP aimed at easing the lives of one million deaf sign language users in Europe.

The goal of this project is to develop a service concept and later a technology platform and service that can be used by any deaf or hard of hearing citizen within the European Union to assist them with real-time live sign language interpretation by a certified sign language interpreter or/and a real- time captioning service in order to enable independent communication with the institutions of the European Union, such as the European Parliament or the European Commission.

November 25th, 2013|Sample Data-Articles|


Vilnius, 16-17 November 2013 | The European Disability Forum met this weekend in Vilnius, Lithuania, gathering together representatives of its member organisations all around Europe, as well as representatives of the Lithuanian Republic and European institutions. On the first day of the Board meeting, a European conference took place focusing on: 'Disability and sustainable development. A perspective from the UN Convention on the Rights of Persons with Disabilities'.

Opening the conference, Dovilé Juodkaité, President of the Lithuanian Forum for the Disabled welcomed this event as the only one focusing on the rights of persons with disabilities within the three pillars: social, economic and environmental of sustainable development and in the frame of the programme of the Lithuanian Presidency of the EU.

EDF President, Yannis Vardakastanis, underlined the importance of inclusive development. “It gets more and more understandable that inclusive development cannot be considered as such, unless it takes into account and on board persons with disabilities. Development that does not include persons with disabilities is a direct violation of the UN Convention on the Rights of Persons with Disabilities (UN CRPD). Development should affect every citizen in society without any exclusion or discrimination”, said Yannis Vardakastanis.

Speaking also at the opening of the conference, the Lithuanian Minister of Social Security and Labour, Algimanta Pabedinskiene, stressed the Lithuanian Presidency’s commitment to a sustainable growth for Europe with the inclusion and active participation of persons with disabilities.

November 21st, 2013|News|

Fesoce new Deafblind campaign

November 6, 2013

Federacion Española de Sordoceguera (Deafblind Spanish Federation) launched today its brand new fund raising campaign in Barcelona, Spain. This campaign aims to promote the awareness of deafblind as a unique disability, to influence for suitable facilities around the nation and as a way to raise the necessary funds to support families, professionals and deafblind people.

FESOCE is a Spanish organization that gathers all country´s deafblind associations to assess, assist and represent all those individuals affected by deafblind around the country.

November 6th, 2013|News|